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This blog is about coping with the strains of chronic illness whilst bringing up two beautiful children; it's also about the stresses of bringing up two children on your own while suffering with a chronic ongoing health problem which is at times very severe.... you can look at it either way. It's about being a single mum; it's about raising awareness of Interstitial Cystitis; it's about helping me cope. Writing this blog is beginning to bring me back to who I really am, who I really always was, before the single motherhood took over full time, before the illness set in.... a writer. I've always written, from essays to stories to journalism. This is the first thing I've written in years. It's helping me regain my confidence. PLEASE DO LEAVE ME COMMENTS AFTER MY POSTS! I'd genuinely love to hear your views on my (sometimes controversial) opinions. Thank you for taking the time to read. It would be great if you could comment so I know that you've been here and what you think.

Thursday 21 August 2014

trapped screaming inside my bladder, computer, house, life as a mummy

So today:

I bought a laptop with windows 8 which I know I won't be able to use and it will leave me in tears rather than enable me to write more either cathartically or for work or both. Instead I will spend all my time trying to make another stupid computer work.

I overreacted to the above because my bladder was burning burning burning all through the PC world hobbit man (Gollum was right about Sam all along, it seems) talking me through endless possibilities and impossibilities and all I wanted was a toilet. The nearest one was in McDonalds and I hobbled there after 2 hours of searing pain. I had bought the wrong laptop. I didn't care because finally, here was somewhere I could empty my bladder. it took about 5 minutes before my bladder would relax as my muscles were so tight. Outside, the great British public were eating their greasy burgers, shouting at their kids, knocking on the door ('she's not disabled, is she?').

I started driving to my acupuncture appointment when my daughter rang. She told me some upsetting things about her father bullying her , which I reacted to by shouting at him. I stood up to him, telling him he couldn't treat her like that, not anticipating the reaction. His reaction was to explode. Completely explode. At her; at me; shouting; spitting down the phone. He then starting calling me a 'stupid fat bitch', within her earshot, at which point, unbeknownst to either him or to me, she ran away; ran crying from her aunt's house down to the harbour in the Cornish village where they are staying, and got lost. Meanwhile I was apologising to her control freak bully father, talking him down, pandering to his ego, oh I'm so so good at that part, I've been playing it all my life...

Shout at me; I'll apologise. Criticise me; I'll capitulate. Put me down; and I'll shrink into a little ball.
I've spent my entire adult life around men who bully and abuse me.

So I calmed him down enough that he didn't yell at her or me anymore, or just dump her in the car and drive her home and dump her on my front door. Not because I didn't want to (though if I'm totally honest, a part of me was screaming 'I need the fucking rest and I have medical appointments in the next 3 days which I've arranged thinking I don't have the children here!!!!') because I want her with me if she is upset and part of me right  now at 1am wants to just get in the car and drive there and scoop her up.... but because she does not need a Daddy crisis 2 weeks before starting secondary school. If things are still bad, I was thinking, we'll get her at the weekend. So I talked my beautiful daughter's ugly father down from the edge of his semi-psychosis; and then 5 minutes later, the phone rang again; again I pulled over and my daughter said 'Mum, I ran away from them; I'm in a phone box'.

I had to spend 20 minutes sorting it out from miles away while her father's phone was switched off; I even found a local taxi company who were going to pick her up, when we finally got through to him and he went to collect her.

She told me later on the phone that her apology to him was 'fake'. She hates his girlfriend (Polish, conventional, hard as nails, and that's all I know; I haven't met her. but apparently she handed my daughter a brown paper bag, after insulting her and her mother, and told her to breathe into it to stop the hyperventilation) and is starting to hate him. I told her to stick it out until the weekend if she could; she is ok as her cousin is with her and they're camping. She said 'if you give Daddy a fake apology he's ok'. Something I found out in the 3 years of verbal, emotional and physical abuse I endured while living with him. He slept with 5 other women during the first year of my daughter's life. I kept saying it was ok, because look at me, how fat and disgusting I am, and how  I have trapped him into this life he hates....

Came home and cried and sat in a bath for 2 hours reading and cried some more and tried to eat and drank a little bit of gin and watched some tv and stared into space......

So what shall I do for IC awareness month in September? Dye my hair blue before it falls out from the Elmiron? Write an article and hope that somewhere publishes it, if I can get my computer to work? Sit and cry every night and just GIVE UP BECAUSE THIS FUCKING ILLNESS IS NEVER GOING TO GO AWAY AND I HAVE NOBODY TO PUT ME FIRST AND HOW CAN I GO ON
WHEN I NEVER GET A BREAK?

I want a break from all of this. I want SILENCE. I want to wake up in heaven and it all be behind me.

3 comments:

  1. Oh no it sounds as if you don't need this drama. I'm going through similar at the moment regarding residency of children and finding that I doubt myself more now that I have IC )-: Do you feel that way? I so relate to standing through some pleasantries with the computer guy whilst your bladder is screaming at you - I get that a lot, had it at a school function the other day where everyone else was asking questions and I just thought "shut the fuck up so this presentation can finish I need to find a toilet". You did great for your daughter there and you should be very proud she felt so able to call you and tell you what she was really feeling. Her dad sounds like an asshole but at least she has you fighting her corner, although I know how hard it is to stay fighting with this pain.

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  2. Hi there. Sorry you're feeling so down. Your last sentence totally resonates with me, especially over the last two years. I wrote before and I think I might have depressed the hell out of you. I'm the menopausal oldie who has had IC for 14 years. However, like I said, its gotten worse since I got near 50...hormonal apparently. Anyway, I am on cystistat, pain killers, sleeping tablets and antidepressants at the moment, things are up and down but I refuse to give up. I get the feeling of wanting to lie down to sleep and never waking up but I won't let it beat me. We have kids to get up for in the morning and although I'm luckier than you, having a husband to help, I still have "the guilt" of not being the mother I was before this fucking illness got worse. Glad you're back writing though, I was so worried about you. It helps to know there are others in my boat! Take care honey..chins up. Xxx

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  3. thank you both for your lovely comments. sorry haven't written lately, life has been so demanding and I have been feeling very ill. means a lot to have some support out there and thanks for reposting my words too . Heather what's your experience of Cystistat? You didn't depress the hell out of me at all. It is reassuring to me that you are still able to keep going with a positive attitude. And thanks too, whoever commented above about relating to the bladder screaming at you while you are trying to do something useful... Yes, you feel like you're going crazy, and yes, you doubt yourself. I don't have any answers. Just trying to get through the days at the moment. Stay strong xxx

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