Day 6: IC awareness month
What do you know now that you wish you'd been told back then?
I wish I'd been told: this is a new era for you now. How completely IC changes and shifts every single area of your life. What a massive part of your life it will become and how you cannot go through a day without some/much/almost total focus on your bladder (depending on the day and whether you're flaring). Your relationship with this disease will affect your relationship with everything and everyone else.
You will learn a lot about yourself, and about those around you. You will have to reorganise your priorities and drop some things that were important to you and find some new things to do and you will have no choice but to slow down. You will feel unbearably sad some days; other days you will feel you are managing. You will develop more sympathy and compassion for others.
We will spend a long time trying and discounting different treatments without any guarantee of success. This will be really frustrating and disspiriting. Well-meaning people will often say to you 'isn't there any kind of medicine they can give you?' or 'you don't look ill to me.'
You will need huge inner strength.
About Me
- rainbowgirl
- This blog is about coping with the strains of chronic illness whilst bringing up two beautiful children; it's also about the stresses of bringing up two children on your own while suffering with a chronic ongoing health problem which is at times very severe.... you can look at it either way. It's about being a single mum; it's about raising awareness of Interstitial Cystitis; it's about helping me cope. Writing this blog is beginning to bring me back to who I really am, who I really always was, before the single motherhood took over full time, before the illness set in.... a writer. I've always written, from essays to stories to journalism. This is the first thing I've written in years. It's helping me regain my confidence. PLEASE DO LEAVE ME COMMENTS AFTER MY POSTS! I'd genuinely love to hear your views on my (sometimes controversial) opinions. Thank you for taking the time to read. It would be great if you could comment so I know that you've been here and what you think.
Oh Yeah I know all about that last one!! 'But how well you look today!!!'
ReplyDelete'are you sure that you're ill? you look so healthy?'
oh yeah like id be lying about it!!! thanks this is a really great blog thanks for doing this